Altruism, is when a person shows selfless concern for the well-being of others. A beautiful trait of character that I hold dear to heart and have also taken great pride in observing amongst some of my team members. In particular our colour director Seniz Alkan who recently decided to help raise awareness and funds for a little boy called Metehan. Metehan was diagnosed with spinal muscular atrophy type 1 - a neuromuscular disease so severe that many children with SMA type 1 do not reach the age of two.
As SMA is a rare disease, Novartis charges a huge fee to cover their R&D costs and make a profit: Zolgensma costs $2.1 million – with additional expenses such as travel, accommodation and consultancy fees, the total amount of reaches $2.45 million (currently £1.9m). Since deciding to join the cause to help Metehan, Seniz has raised over £100k. As a close friend and colleague I am keen to help raise further awareness about Metehan’s story and terrible disease.
For those of you who are interested to find out more or might wish to donate you may do so here:
